There has, however, been moral regression…The full garish flowering of the baby boomers’ vast sense of entitlement encompasses an entitlement to exemption from nature’s mishaps, and to a perfect baby. So today science enables what the ethos ratifies, the choice of killing children with Down syndrome before birth. This is what happens to 90 percent of those whose parents have prenatal testing. Which is unfortunate, and not just for them. Judging by Jon, the world would be improved by more people with Down syndrome, who are quite nice, as far as humans go.
For those of you who may not know, George Will is a very famous and highly visible conservative political columnist and author (he’s also written a couple of best-selling books about baseball–he’s a fanatic about the sport). Will’s eldest son Jon has Down Syndrome, and Will’s written about him off and on over the years.
Will’s definitely of the Warm Fuzzy stripe, and the extent of Jon’s disability–combined with Will’s money and social connections–has meant that his son has been able to meet his full potential and then some. The difference that money and social capital has made in Jon’s life is driven home when you see the photos of Jon Will with former President G. W. Bush, former Vice President Al Gore, and Tommy Lasorda.
I wonder how George Will would feel if the money hadn’t been there. If he didn’t have connections with some of the most powerful politicians in the US.
I had grabbed my laptop in outrage, but fortunately I didn’t have to respond, as some people did so very eloquently in the Comments section:
Mr. Will, I’m glad your son has been blessed with a loving family and dignifying job. It is also truly unfortunate that not all of the other 400,000 Americans with Trisomy 21 are able to possess the same circumstances…The other 399,999 people born with Down Syndrome are likely not collectively all as fortunate as your son. It costs significantly more to raise a child with a congenital birth defect. You said it yourself that improving outcome requires receiving “early and continuing interventions.” That costs a lot of money. You can decry the callousness of this argument, but there are countless families pitted in this very real dilemma. I can think of no crueler punishment to a family than to force them to bear a child they know they will not be able to ever adequately provide for. Having already financially strained families be forced to make even harder decisions to preserve the health and quality of life of their child doesn’t produce any winners. All I see are cash-strapped, heartbroken parents and a child not receiving the extra attention and intervention he so sorely needs. The only winner here is Mr. Will’s moral superiority… if you can call that a win
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…My wife and I were told that our second child might have Down syndrome, and for a few days we struggled with what we were being confronted with. I thank God that further tests showed that our child did not have the syndrome and we were spared the difficulty of making such a decision. I can’t honestly say I don’t know what it is I would have done had the situation been different. Because of that, knowing what it was like, I could never disparage another’s choice in this matter. I believe that abortion is wrong. I also believe that it is not for me or anyone else to make that decision for someone else. Not everyone is as strong as you in their beliefs. Not everyone has the character or fortitude that it takes to raise a child that will never be truly independent. A child that will always need watching because others might not be as kind as we would like. Others don’t have the financial means that might be necessary. All I am saying is, I admire you for the choice you made and the love you obviously have for your son. I just think that you should also have some compassion for others who may have made a very difficult decision that in your eyes is wrong, but for reasons you might never understand, was right for them.
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While I believe part of Mr. Will’s point is people with Down Syndrome are not what many believe them to be, neither are they all what he believes them to be, not every family has the ability to offer the support that’s needed…
Jon Will has had every advantage his family could give him. Not so for many, some of whom have ended up working in restaurants I’ve managed. I remember one man who knew he was going no further than washing dishes. His life was far from Mr. Will’s son–frustrated, unhappy, angry, not quite sure why he wasn’t friends with the other workers his age, but very aware that he wasn’t.
… I find Mr. Will’s condenscension towards those who do not believe as he does in this matter intolerable.
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Mr. Will, I salute you and the Kennedy family for their dedication to their Down’s Syndrome children. However, you are very obviously one of the most entitled people in our country with access to the best American life has to offer. Some people are not as fortunate and cannot afford to care for someone with special needs, yet you judge them. I’m sure Democrats are the ones who funded projects to find reasons and treatments for Down’s Syndrome and other health issues. Did your son benefit from any of that funding? Yes, he and you did. So get off your almighty high horse and pay your fair share of taxes so some of the rest of us can benefit from improvements OUR taxpayer dollars made possible.
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Does Will support the Ryan budget which cuts Medicaid and other support systems for the handicapped? Interesting that these pro-lifers want to reduce help for the handicapped and their parents, while insisting that the unfortunate parents bring to term this burden on themselves, the child and society. We can applaud Will’s celebration of his son’s life, but not his sanctimonious self rightousness that his is the proper way for all parents.
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…Not every family has a breadwinner making hundreds of thousands of dollars a year as a celebrated columnist. Not every family has first rate health insurance. Not every family has the connections and resources to put a profoundly developmentally and physically disabled person into various therapy programs. Not every family has the connections to get his kid a job working for the Washington Nationals.
Predictably, the authors are being shouted down in the Comments section. Still, I’m glad they spoke up. People need to know that it’s hard out here for the families of people whose disabilities render them unable to progress or achieve independence.
